Stargardts

INSIGHT: the movie

Experimenting with some interview footage


This might be a trailer. Or reel of Casting Call Outtakes. I have recorded most of my ophthalmologists sessions. They been a great help to me in understanding Stargardts Disease. But entertaining or educational? You be the judge.

My Big VIP Adventure

Listen (sticky post)

M ore than 20 years ago, I was diagnosed with late onset Stargardt Disease. It is a progressive form of macular degeneration where the build up of Vitamin A kills retina cells leading to central vision loss. I cannot read a menu or a book. By comparison my peripheral vision is absolutely amazing.

amsler grid - me
How I see the Amsler Grid

This blog is my journal of how I am adjusting as a VIP (visually impaired person). Adapting to Vision Loss is a bit like going through the stages of grief. Consequently, I have quietly experienced periods of denial, anger, bargaining, depression and acceptance. as well as sporadic moments of profound philosophical insights into , cribbage, shoveling snow and the human comedy.

A timeline of that path would include: Eight years ago I stopped playing basketball. Six years ago I stopped driving Five years ago ended my commercial graphic design business as my skillsets slowed,. Two years ago I stopped reading print, transitioning to software that converts text-to-speech. Last year, thanks to ZOOM, I hired an assistant to screen share and aid me with intricate computer tasks. Technology Rocks. I ❤️ Voice Over.

As an artist, the impact has been disturbing. but I am determined to not let that defeat me. I am resolved to persist and record this journey. –KBS June 5, 2021